a different view of the world
My husband has his appointment with the Movement Disorders Specialist at the Medical University of South Carolina a week from tomorrow, so we don't know much more yet except that a low dose of Sinemet (the classic Parkinson's medication) is helping him. In the meantime, what has been consuming my time (besides my own work) is starting to work through our financial situation. I regret we don't have long-term care insurance and am now planning to buy it on me (it is too late to get it for my husband). The hard thing about trying to figure out the financial issues is that it requires me to look ahead to how difficult it is likely to be farther down the road.
I was for a while feeling very trapped, but I am feeling better. What helped me was coming to the conclusion that it is the way the world works that most people who deal with things like a spouse with a progressive disease do it because we don't have any choice. There is a kind of peace in not having a choice--less opportunity for second-guessing.
I was at a conference in Charlotte this weekend. This morning a few minutes before 5 am the fire alarm went off in the hotel. I put on my running clothes and after walking down six flights of stairs and standing around outside the building for a little while talking to people I went and ran three laps around a silly artificial lagoon.