I went this evening to our local Lewy Body Dementia support group.  The organizer and I were the only ones to show up.  We talked about how we might find more people.  The local Alzheimer's association does let people know about the LBD support group--that is how I found out about it.  She thinks the problem is that doctors in the area are not diagnosing Lewy Body Dementia.  I suggested then maybe we should organize it as a Parkinson's support group with caregivers meeting separately.  The closest Parkinson's support group is 30 miles away and meets in the early afternoon.
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