tag:blogger.com,1999:blog-3830953.post5277148215345695554..comments2023-10-24T10:19:44.079-04:00Comments on Deep Language: Neuropsychological testingPemhttp://www.blogger.com/profile/15013673393201944341noreply@blogger.comBlogger5125tag:blogger.com,1999:blog-3830953.post-27248789342593840592008-05-28T07:48:00.000-04:002008-05-28T07:48:00.000-04:00Stella here... I think one of the most cruel side ...Stella here... I think one of the most cruel side affects of LBD is the false hope the caregiver constantly lives with. "He's so normal". Sure he is. Come live with us for a week! Don't we wish with all our heart and soul this is not real. Pam, who knows John best, you or the testing materials? But still you say, "What if". I'm sorry, so sorry, for this experience the two of you are living through. By the way, "Show time" is a real phenomenon, expect a let down afterwards.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-3830953.post-65158247665564837472008-05-28T10:52:00.000-04:002008-05-28T10:52:00.000-04:00I agree with Stella: trust your experiences here. ...I agree with Stella: trust your experiences here. Tests can be deceiving and deceived.Isishttp://www.blogger.com/profile/12050282354531898285noreply@blogger.comtag:blogger.com,1999:blog-3830953.post-31249645142705162612008-05-28T14:30:00.000-04:002008-05-28T14:30:00.000-04:00John (and you) are trained test-takers for decades...John (and you) are trained test-takers for decades now. One slice of time on a "test" is not reflective of his entire psychological situation. But you both have lots and lots of experience taking tests, so both of you would test well. This test will be a benchmark that will allow you to better see cognitive decline LATER. <br><br>Teaching someone with dimentia NEW habits (lists, tape recorder memos, etc.) is pretty much impossible. This is not a moment in life when people acquire new skills. <br><br>I would like to suggest you make a list of one or two goals daily, that John can check off. Leave it on the refrigerator or some place prominent on a white board where he can leave a note, "Called. No one answered; left message on answering machine." Stuff like that. It's still a novel thing that he may resist, but if you can form the habit now, it might stick with him as time progresses, and that way you've given him two or three prioritized tasks so he doesn't get lost in the small stuff. <br><br>It is hard to remember that the person isn't doing this to drive you ever loving insane at times, but it's not intentional. He wouldn't want this if he could have dodged it. I'm sorry it's so difficult. <br><br>Many people have been helped by the 36 Hour Day.Joannhttp://www.blogger.com/profile/01380535457821185367noreply@blogger.comtag:blogger.com,1999:blog-3830953.post-77126633388927452922008-05-28T21:04:00.000-04:002008-05-28T21:04:00.000-04:00I remember just 1 year ago, being very frustrated ...I remember just 1 year ago, being very frustrated by the fact that, in the Neurologists office, GW could count backwords from 100 by 7s without hesitation. but would have difficulty counting his daily cribbage game points. Another case of "show time" Whenever the DR. would ask "How are you feeling" he would reply "just great!" any problems? "No" However I would always hand the Dr. the computer page with the list of problems I had noticed so he could discuss those. After 19 years of playing cribbage every day, we have put the gameboard to rest. However when one of our out of town daughters comes to visit "show time" can revive his skills amazingly !!!<br>Dispousenoreply@blogger.comtag:blogger.com,1999:blog-3830953.post-87993578430999862892008-05-29T01:07:00.000-04:002008-05-29T01:07:00.000-04:00Oh do I know Show Time! Daddy was so good at it. ...Oh do I know Show Time! Daddy was so good at it. No one believed he was as bad off as I knew him to be. It is so very frustrating because it does feel like they are faking it....If only they were...<br>Most doctor's know only the bare minimum about LBD; I always appreciated the ones that were at least honest about that. <br>Our Neurologist just finally told me to take Daddy home, there was nothing to do. Try the drugs, thet might help for a while.<br>I like joann's suggestion to make him a list. Daddy would "wash" the dishes every morning for as long as he could. He wanted to help out. Eventually small chores like sorting through the junk mail were his job.Paulinenoreply@blogger.com